Aboriginal people living with hepatitis C in New South Wales

Project Status: Archive
People Involved: Carla Treloar, Loren Brener, Lenoma Clair Jackson
Research Areas: Viral Hepatitis, Injecting Drug Use & Harm Reduction
Funding Agency: NSW Health

This ongoing project is a qualitative and quantitative evaluation of the investment made by NSW Health to improve care and treatment for Aboriginal people with hepatitis C. The program of work developed by NSW Health included new positions (Access Coordinators), community education and workforce development for staff from Aboriginal and mainstream health services. The role of CSRH was to conduct a multi-method project involving surveys of Aboriginal people with hepatitis C and follow-up qualitative interviews with a sub-sample recruited from the survey participants. In addition, we interviewed a range of health workers who have been involved with the NSW Health program (and some who have not). We explored the experience of people living with hepatitis C including their decisions around hepatitis C care and their experience of the programs funded by NSW Health. Using data from health worker participants, we examined what organisational and systems issues were important to address for hepatitis C care, and what was required for future provision of services for Aboriginal people with hepatitis C, their communities and for the Aboriginal community controlled health sector. Data collection was completed in 2013, and a project report submitted.


Publications

Brener, L., Wilson, H., Jackson, L., Johnson, P., Saunders, V., Newland, J., & Treloar, C. (published online). Experiences of diagnosis, care and treatment among Aboriginal people living with hepatitis C. Australian & New Zealand Journal of Public Health.

Brener L, Wilson H, Jackson LC, Johnson P, Saunders V, Newland J, Treloar C. The role of Aboriginal community attachment in promoting lifestyle changes after HCV diagnosis. Health Psychology Open. Accepted 22 July 2015.

Treloar, C., Jackson, C., Gray, R., Newland, J., Wilson, H., Saunders, V., . . . Brener, L. (2015). Care and treatment of hepatitis C among Aboriginal people in New South Wales, Australia: implications for the implementation of new treatments. Ethn Health, 1-19. http://dx.doi.org/10.1080/13557858.2015.1004870

Treloar, C., Jackson, L. C., Wilson, H., Saunders, V., Brener, L., Johnson, P., Gray, R. (2014). A study of Aboriginal people in NSW living with hepatitis C: A report to community. (Monograph 4e/2014). Sydney: Centre of Social Research in Health, UNSW Australia. (PDF) [9 Mb]

Treloar, C., Brener, L., Wilson, H., Jackson, L. C., Saunders,V., Johnson, P., Gray, R., & Newland, J. (2013). Evaluation of NSW Health Aboriginal hepatitis C program (Monograph 5/2014). Sydney: Centre for Social Research in Health, UNSW Australia. (PDF) [2 Mb]