Our People

Dr Sarah Bernays

Centre for Social Research in Health



    Book Chapters

    • Bernays S;Seeley J;Rhodes T;Mupambireyi Z, 2015, 'What am I 'living' with? Growing up with HIV in Uganda and Zimbabwe', in Children, Health and Well-being: Policy Debates and Lived Experience, pp. 98 - 111, http://dx.doi.org/10.1002/9781119069522.ch8

    Journal articles

    • Tong A;Manns B;Wang AY M;Hemmelgarn B;Wheeler DC;Gill J;Tugwell P;Pecoits-Filho R;Crowe S;Harris T;Van Biesen W;Winkelmayer WC;Levin A;Thompson A;Perkovic V;Ju A;Gutman T;Bernier-Jean A;Viecelli AK;O'Lone E;Shen J;Josephson MA;Cho Y;Johnson DW;Sautenet B;Tonelli M;Craig JC;Craig J;Tong A;Wang A;Hemmelgarn B;Manns B;Wheeler D;Gill J;Tugwell P;Pecoits-Filho R;Crowe S;Harris T;van Biesen W;Winkelmayer W;Levin A;Sinha A;Ong A;Denny A;Thompson A;Dart A;Eddy A;Bernier-Jean A;Kelly A;Viecelli A;Davenport A;Narva A;Ju A;Sharma A;Warrens A;Chapman A;Teixeira-Pinto A;Kelly A;Murphy B;Sautenet B;Padilla B;Canaud B;Pullin B;Schiller B;Robinson B;Hanson C;Hawley C;Logeman C;Lok C;Wanner C;Herzog C;Rutherford C;Ahn C;Sumpton D;Rosenbloom D;Harris D;Baron D;Johnson D;White D;Gipson D;Fouque D;Eilers D;Bockenhauer D;O'Donoghue D;Chen D;Du, 2018, 'Implementing core outcomes in kidney disease: report of the Standardized Outcomes in Nephrology (SONG) implementation workshop', Kidney International, vol. 94, pp. 1053 - 1068, http://dx.doi.org/10.1016/j.kint.2018.08.018
    • Zuurmond M;Nyante G;Baltussen M;Seeley J;Abanga J;Shakespeare T;Collumbien M;Bernays S, 2018, 'A support programme for caregivers of children with disabilities in Ghana: Understanding the impact on the wellbeing of caregivers', Child: Care, Health and Development, http://dx.doi.org/10.1111/cch.12618
    • Kawuma R;Seeley J;Mupambireyi Z;Cowan F;Bernays S, 2018, '“Treatment is not yet necessary”: delays in seeking access to HIV treatment in Uganda and Zimbabwe', African Journal of AIDS Research, vol. 17, pp. 217 - 225, http://dx.doi.org/10.2989/16085906.2018.1490785
    • Mupambireyi Z;Bernays S, 2018, 'Reflections on the Use of Audio Diaries to Access Young People’s Lived Experiences of HIV in Zimbabwe', Qualitative Health Research, http://dx.doi.org/10.1177/1049732318780684
    • Sibanda EL;Bernays S;Weller IV D;Hakim JG;Cowan FM, 2018, '"Well, not me, but other women do not register because."- Barriers to seeking antenatal care in the context of prevention of mother-to-child transmission of HIV among Zimbabwean women: A mixed-methods', BMC Pregnancy and Childbirth, vol. 18, http://dx.doi.org/10.1186/s12884-018-1898-7
    • Gutman T;Hanson CS;Bernays S;Craig JC;Sinha A;Dart A;Eddy AA;Gipson DS;Bockenhauer D;Yap HK;Groothoff J;Zappitelli M;Webb NJ A;Alexander SI;Goldstein SL;Furth S;Samuel S;Blydt-Hansen T;Dionne J;Michael M;Wenderfer SE;Winkelmayer WC;Currier H;McTaggart S;Walker A;Ralph AF;Ju A;James LJ;Carter S;Tong A, 2018, 'Child and Parental Perspectives on Communication and Decision Making in Pediatric CKD: A Focus Group Study', American Journal of Kidney Diseases, vol. 72, pp. 547 - 559, http://dx.doi.org/10.1053/j.ajkd.2018.05.005
    • Mallewa J;Szubert AJ;Mugyenyi P;Chidziva E;Thomason MJ;Chepkorir P;Abongomera G;Baleeta K;Etyang A;Warambwa C;Melly B;Mudzingwa S;Kelly C;Agutu C;Wilkes H;Nkomani S;Musiime V;Lugemwa A;Pett SL;Bwakura-Dangarembizi M;Prendergast AJ;Gibb DM;Walker AS;Berkley JA;Mugyenyi P;Kityo C;Musiime V;Wavamunno P;Nambi E;Ocitti P;Ndigendawani M;Kabahenda S;Kemigisa M;Acen J;Olebo DF;Mpamize G;Amone A;Okweny D;Mbonye A;Nambaziira F;Rweyora A;Kangah M;Kabaswahili B;Abach J;Abongomera G;Omongin J;Aciro I;Philliam A;Arach B;Ocung E;Amone G;Miles P;Adong C;Tumsuiime C;Kidega P;Otto B;Apio F;Baleeta K;Mukuye A;Abwola M;Ssennono F;Baliruno D;Tuhirwe S;Namisi R;Kigongo F;Kikyonkyo D;Mushahara F;Okweny D;Tusiime J;Musiime A;Nankya A;Atwongyeire D;Sirikye S;Myalo S;Noowe N;Lugemwa A;Kasozi M;Mwebe S;Atwine L;Senkindu T;Natuhurira I;Katemba C;Nins, 2018, 'Effect of ready-to-use supplementary food on mortality in severely immunocompromised HIV-infected individuals in Africa initiating antiretroviral therapy (REALITY): an open-label, parallel-group, rand', The Lancet HIV, vol. 5, pp. e231 - e240, http://dx.doi.org/10.1016/S2352-3018(18)30038-9
    • Aggarwal A;Bernays S;Payne H;van der Meulen J;Davis C, 2018, 'Hospital Choice in Cancer Care: A Qualitative Study', Clinical Oncology, vol. 30, pp. e67 - e73, http://dx.doi.org/10.1016/j.clon.2018.03.009
    • Siika A;McCabe L;Bwakura-Dangarembizi M;Kityo C;Mallewa J;Berkley J;Maitland K;Griffiths A;Baleeta K;Mudzingwa S;Abach J;Nathoo K;Thomason MJ;Prendergast AJ;Walker AS;Gibb DM;Mugyenyi P;Kityo C;Musiime V;Wavamunno P;Nambi E;Ocitti P;Ndigendawani M;Kemigisa M;Acen J;Olebo D;Mpamize G;Amone A;Okweny D;Mbonye A;Nambaziira F;Rweyora A;Kangah M;Kabaswahili V;Abach J;Abongomera G;Omongin J;Aciro I;Philliam A;Arach B;Ocung E;Amone G;Miles P;Adong C;Tumsuiime C;Kidega P;Otto B;Apio F;Baleeta K;Mukuye A;Abwola M;Ssennono F;Baliruno D;Tuhirwe S;Namisi R;Kigongo F;Kikyonkyo D;Mushahara F;Okweny D;Tusiime J;Musiime A;Nankya A;Atwongyeire D;Sirikye S;Mula S;Noowe N;Lugemwa A;Kasozi M;Mwebe S;Atwine L;Senkindu T;Natuhurira T;Katemba C;Ninsiima E;Acaku M;Kyomuhangi J;Ankunda R;Tukwasibwe D;Ayesiga L;Hakim J;Nathoo K;Bwakura-Dangarembizi , 2018, 'Late Presentation with HIV in Africa: Phenotypes, Risk, and Risk Stratification in the REALITY Trial', Clinical Infectious Diseases, vol. 66, pp. S140 - S146, http://dx.doi.org/10.1093/cid/cix1142
    • Bernays S;Bukenya D;Thompson C;Ssembajja F;Seeley J, 2018, 'Being an ‘adolescent’: The consequences of gendered risks for young people in rural Uganda', Childhood, vol. 25, pp. 19 - 33, http://dx.doi.org/10.1177/0907568217732119
    • Horter S;Thabede Z;Dlamini V;Bernays S;Stringer B;Mazibuko S;Dube L;Rusch B;Jobanputra K, 2017, '“Life is so easy on ART, once you accept it”: Acceptance, denial and linkage to HIV care in Shiselweni, Swaziland', Social Science and Medicine, vol. 176, pp. 52 - 59, http://dx.doi.org/10.1016/j.socscimed.2017.01.006
    • Skovdal M;Wringe A;Seeley J;Renju J;Paparini S;Wamoyi J;Moshabela M;Ddaaki W;Nyamukapa C;Ondenge K;Bernays S;Bonnington O, 2017, 'Using theories of practice to understand HIV-positive persons varied engagement with HIV services: A qualitative study in six Sub-Saharan African countries', Sexually Transmitted Infections, vol. 93, http://dx.doi.org/10.1136/sextrans-2016-052977
    • Mavhu W;Willis N;Mufuka J;Mangenah C;Mvududu K;Bernays S;Mangezi W;Apollo T;Araya R;Weiss HA;Cowan FM, 2017, 'Evaluating a multi-component, community-based program to improve adherence and retention in care among adolescents living with HIV in Zimbabwe: Study protocol for a cluster randomized controlled trial', Trials, vol. 18, http://dx.doi.org/10.1186/s13063-017-2198-7
    • Bernays S;Paparini S;Seeley J;Rhodes T, 2017, '“Not Taking it Will Just be Like a Sin”: Young People Living with HIV and the Stigmatization of Less-Than-Perfect Adherence to Antiretroviral Therapy', Medical Anthropology: Cross Cultural Studies in Health and Illness, vol. 36, pp. 485 - 499, http://dx.doi.org/10.1080/01459740.2017.1306856
    • Bernays S;Paparini S;Seeley J;Kihika SN;Gibb D;Rhodes T, 2017, 'Qualitative study of the BREATHER trial (Short Cycle antiretroviral therapy): Is it acceptable to young people living with HIV?', BMJ Open, vol. 7, http://dx.doi.org/10.1136/bmjopen-2016-012934
    • Bernays S;Paparini S;Gibb D;Seeley J, 2016, 'When information does not suffice: young people living with HIV and communication about ART adherence in the clinic', Vulnerable Children and Youth Studies, vol. 11, pp. 60 - 68, http://dx.doi.org/10.1080/17450128.2015.1128581
    • Butler K;Inshaw J;Ford D;Bernays S;Scott K;Kenny J;Klein N;Turkova A;Harper L;Nastouli E;Paparini S;Choudhury R;Rhodes T;Babiker A;Gibb D, 2016, 'BREATHER (PENTA 16) short-cycle therapy (SCT) (5 days on/2 days off) in young people with chronic human immunodeficiency virus infection: An open, randomised, parallel-group phase II/III trial', Health Technology Assessment, vol. 20, pp. 1 - 107, http://dx.doi.org/10.3310/hta20490
    • Sibanda EL;Bernays S;Weller IV D;Hakim JG;Cowan FM, 2015, 'Manuscript title: Facilitators and barriers to cotrimoxazole prophylaxis among HIV exposed babies: A qualitative study from Harare, Zimbabwe', BMC Public Health, vol. 15, http://dx.doi.org/10.1186/s12889-015-2136-0
    • Bernays S;Seeley J;Rhodes T;Mupambireyi Z, 2015, 'What am I 'living' with? Growing up with HIV in Uganda and Zimbabwe', Sociology of Health and Illness, vol. 37, pp. 270 - 283, http://dx.doi.org/10.1111/1467-9566.12189
    • Bernays S;Jarrett P;Kranzer K;Ferrand RA, 2014, 'Children growing up with HIV infection: The responsibility of success', The Lancet, vol. 383, pp. 1355 - 1357, http://dx.doi.org/10.1016/S0140-6736(13)62328-4
    • Mupambireyi Z;Bernays S;Bwakura-Dangarembizi M;Cowan FM, 2014, '"I don't feel shy because I will be among others who are just like me. . .": The role of support groups for children perinatally infected with HIV in Zimbabwe', Children and Youth Services Review, vol. 45, pp. 106 - 113, http://dx.doi.org/10.1016/j.childyouth.2014.03.026
    • Bernays S;Rhodes T;Jankovic Terzic K, 2014, 'Embodied accounts of HIV and hope: Using audio diaries with interviews', Qualitative Health Research, vol. 24, pp. 629 - 640, http://dx.doi.org/10.1177/1049732314528812
    • Wilson S;Houmøller K;Bernays S, 2012, ''Home, and not some house': Young people's sensory construction of family relationships in domestic spaces', Children's Geographies, vol. 10, pp. 95 - 107, http://dx.doi.org/10.1080/14733285.2011.638172
    • Rhodes T;Bivol S;Scutelniciuc O;Hunt N;Bernays S;Busza J, 2011, 'Narrating the social relations of initiating injecting drug use: Transitions in self and society', International Journal of Drug Policy, vol. 22, pp. 445 - 454, http://dx.doi.org/10.1016/j.drugpo.2011.07.012
    • Bernays S;Rhodes T;Jankovic Terźić K, 2010, '"You should be grateful to have medicines": Continued dependence, altering stigma and the HIV treatment experience in Serbia', AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV, vol. 22, pp. 14 - 20, http://dx.doi.org/10.1080/09540120903499220
    • Rhodes T;Bernays S;Houmoller K, 2010, 'Parents who use drugs: Accounting for damage and its limitation', Social Science and Medicine, vol. 71, pp. 1489 - 1497, http://dx.doi.org/10.1016/j.socscimed.2010.07.028
    • Bernays S;Rhodes T, 2009, 'Experiencing uncertain HIV treatment delivery in a transitional setting: Qualitative study', AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV, vol. 21, pp. 315 - 321, http://dx.doi.org/10.1080/09540120802183495
    • Rhodes T;Bernays S;Terzić KJ, 2009, 'Medical promise and the recalibration of expectation: Hope and HIV treatment engagement in a transitional setting', Social Science and Medicine, vol. 68, pp. 1050 - 1059, http://dx.doi.org/10.1016/j.socscimed.2008.12.017
    • Rhodes T;Prodanović A;Žikić B;Kuneski E;Pavićević T;Karadžić D;Bernays S, 2008, 'Trust, disruption and responsibility in accounts of injecting equipment sharing and hepatitis C risk', Health, Risk and Society, vol. 10, pp. 221 - 240, http://dx.doi.org/10.1080/13698570802160921
    • Rhodes T;Žikić B;Prodanović A;Kuneski E;Bernays S, 2008, 'Hygiene and uncertainty in qualitative accounts of hepatitis C transmission among drug injectors in Serbia', Social Science and Medicine, vol. 66, pp. 1437 - 1447, http://dx.doi.org/10.1016/j.socscimed.2007.11.009
    • Bernays S;Rhodes T;Barnett T, 2007, 'Hope: A new way to look at the HIV epidemic', AIDS, vol. 21, http://dx.doi.org/10.1097/01.aids.0000299405.06658.a8

    Conference Papers

    • Kawuma R;Bernays S;Siu G;Rhodes T;Seeley J, 2014, 'Children will always be children: Exploring perceptions and experiences of HIV-positive children who may not take their treatment and why they may not tell', in African Journal of AIDS Research, pp. 189 - 195, http://dx.doi.org/10.2989/16085906.2014.927778